I will be running in my undies this February so kids like Catherine can grow up happy and healthy!
This is Catherine! She is a smart, creative and sweet 8-year-old girl. She LOVES to ride horses and play with friends. You wouldn’t know just by looking at her, but she has Neurofibromatosis type 1 (NF).
Catherine’s parents had no idea what NF was until her doctor suspected she might have it due to the amount and location of pigmented spots on her body called café-au-lait spots. She was just 1 year old at that time.
Catherine was officially diagnosed with NF in January 2009 at the age of 2. Upon having a follow up MRI, her family was devastated to learn that she had a type of brain tumor called an optic nerve glioma (a tumor on the nerve that runs from the eye to the brain). More recently, it was discovered that she also has a plexiform neurofibroma on her scalp. Catherine has many doctor visits each year but she always takes it in stride and remains a happy girl.
NO CHILD SHOULD HAVE TO GO THROUGH THIS and we cannot stop until there is a cure for NF.
You can help by donating or joining our team of undie-clad runners. Your donation will provide critical funding that will allow for treatments, clinical trials and ultimately will fund the research to find a cure for NF.
Together, we can be the difference in the lives of children like Catherine and help #endNF.