I will be running in my undies this February so kids like Jack Burke can grow up happy and healthy.
When Jack was 2 years old, he was diagnosed with NF1 (Neurofibromatosis Type 1). At 6 years old, Jack had his first surgery as a result of NF. He had a "debulking" of a tumor in his left orbital area. It was not entirely removed because it could not be, but it did help his vision. In September 2013, he was diagnosed with a glioma (tumor) on his brainstem, and subsequently, had to endure 52 WEEKS of chemotherapy in the attempt to shrink his tumor. This October 2015, Jack had to have brain surgery as a result of complications from NF.
But despite all this, he's one of the happiest kids you'll meet. Like most kids with NF, Jack faces his challenges with a smile and determination and finds a way to live life to the fullest. Through CureNFwithJack founded in 2011, Jack has raised awareness through many events including golf tournaments, garage sales and lemonade stands. He is determined to beat NF so that he and others will see a cure soon.
Over the past four years, teams in 12 cities across the country have come together as one giant "CureNFwithJack" Cupid's Undie Run Team, and in 2016, in total, we raised almost $250K!! YOU CAN BE A PART OF THE PHENOMINON! Join a Team. Donate in Jack's honor and fund critical research to help cure NF. Tell your friends. Just don't do nothing!
Together, we can be the difference in the lives of children like Jack and help #endNF